| Description: | The Scottish Huntington’s Association (SHA) was formed in 1989 by families living with the disease. In 1992 the first part-time professional advisor was employed, funded by Mental Illness Specific Grant, to identify need in Lothian. Evidence was unequivocal; the needs of families living with this devastating disease were overwhelming. Families were excluded from society: the health and social impact of the disease was devastating. In 16 years and following a considerable amount of hard work from families and professional staff, the Association has grown significantly and manages 35 staff throughout Scotland providing expert care to families living primarily in their own homes. Just as importantly, support is offered by families for families via a network of local family support groups. |
